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European health and consumer groups call for patient data safeguards in Digital Omnibus

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Nine European organizations representing healthcare professionals, patients and consumers have issued a joint statement urging EU lawmakers not to weaken protections for patient data as part of the Digital Omnibus.

The organisations acknowledge that digitalisation can deliver “better healthcare, safer medicines use, innovation and more accessible services”, but they warn that efforts to simplify EU digital rules must not come at the expense of “patient confidentiality, professional secrecy or trust in healthcare”.

At the heart of their concerns is the growing range of information that can reveal someone’s health status. This extends beyond medical records to online searches, purchases, consultations, pharmacy interactions, health websites, wearables and apps.

The statement calls for continued strong protection of health and inferred health data, including when data are used in AI systems. It also urges lawmakers to prevent health information being reused for “profiling, advertising, commercial targeting or unrelated commercial purposes”...

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